It’s Endo Awareness Month
I’m going to put a disclaimer here that I’m not a doctor and this is just an awareness post. All of my knowledge on the things I’m about to talk about comes from my own layman’s research and medical treatments for my own body. If you feel that you are experiencing anything I talk about in this post, I STRONGLY urge you to go talk to your doctor and get treated professionally.
Today’s post is… heavy for me to write, but It’s super important to me so bare with me. As a lot of you know, yesterday was International Women’s Day and it just so happened that I had this post scheduled for today so it’s perfect. I’ve wanted to write this for
So because March is Endometriosis Awareness Month let’s talk about Women’s health.
What is Endometriosis?
Endometriosis from a very basic explanation is when the female reproductive system starts producing a tissue very similar to the uterine lining outside of the uterus. It’s called endometrial tissue and is normally triggered by a period, but can be triggered by other things. There is very little known about what causes it other than possible hereditary factors. It can cause extremely painful periods in women, miscarriages, different types of cancer, pain with sex, and infertility, along with a multitude of other symptoms that just make life hard.
About 1 in 10 women in the world is diagnosed with endometriosis.
In can take on average up to 10 years from the onset of symptoms to be diagnosed with the disease.
Endometriosis requires a surgery to diagnose the disease.
A general lack of awareness by both women and health care providers, due to a “normalisation” of symptoms, results in a significant delay from when a woman first experiences symptoms until she eventually is diagnosed and treated.http://endometriosis.org
There is currently no cure for endometriosis, but it can be treated.
My Experience With Endo
My who experience with women’s health starts early. I’ve talked about this before, but I want to do a more honest version. I have
For three years I suspected I had endometriosis. I had a friend in dance who has it and we compared notes a lot. She has to get surgery every three years to remove her endometrial tissue because medication only slows down the production of her type of endometriosis, it doesn’t stop it.
Around my sophomore year of college, I started getting massive stomach pains in my right ovary. In October, I was rushed out of my creative writing class and into the ER one afternoon doubled over in pain so bad my roommate had to speak for me because I couldn’t breathe. They ran a CT scan told me it was stress pains and to go home.
(I’m planning on doing a full story about my battle with PCOS and health in general in September which is PCOS Awareness Month.)
January of my junior year I was in the ER again over winter break. Same pains, same screaming, same agony. This time they ran a CT scan and an ultrasound. I had a cyst show up on the CT scan and not the ultrasound. It burst between the two tests. One more cyst and five doctors later before a doctor finally listened to me saying something is wrong. I had suspected I had scar tissue or Endometriosis and she agreed with me and brought me in for surgery that was meant to diagnose endo. If they find tissue that looks like endometrial tissue they remove it and run tests. If they come back positive you’re diagnosed with endometriosis.
I remember coming home from my consultation with my doctor curling into my mom and asking why I was broken. Why had it taken five doctors to get one who wanted to listen? Why didn’t my body work the way it was meant to?
If I had been diagnosed with endometriosis I would have had a double diagnosis of endometriosis and PCOS. The issue is PCOS and endometriosis are opposite diseases with similar symptoms. PCOS causes you
I was not diagnosed with endometriosis. What they did find was proof of my other theory: scar tissue. Due to having three cysts rupture on one
You can imagine that in the last seven years since my PCOS diagnosis that I’ve become a huge advocate for women’s health. Both diseases are incurable, under diagnosed, and cause a lot of women to feel like they aren’t being heard. I knew I had cysts bursting and causing scar tissue, call it female intuition, but I got diagnosed with everything under the sun before some one would listen to me. I eventually told them just to take it out, but I was told that because I was under forty and hadn’t had kids I would regret it. I’d rather not be in pain and missing half my life then have kids. Adoption exists.
In the wake of international women’s day when everyone is talking about the wage gap and #metoo and everything else under the sun (that I fully
I’m starting a project called
4 Comments on “It’s Endo Awareness Month”
Isabelle @ BookwyrmBitesMarch 11, 2019 at 10:03 pm
women’s health is such an important yet societally overlooked topic. i’m so sorry that you’ve been through so much physical and emotional pain, and from my (admittedly limited) understanding the pain is chronic? or at least comes and goes? in any case, thank you so much for sharing your experiences, raising awareness and linking resources, and I wish you the best for your project ?
Brigid DowneyMarch 12, 2019 at 8:00 am
Yes, the pain is chronic, but it’s much better since my surgery
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